earlyintervention

Childhood Apraxia of Speech

I am thrilled to feature this guest post by Alyssa Gilligan, M.S., CCC-SLP. Alyssa is the founder/owner of Crescendo Speech Therapy in Baltimore, Maryland. She specializes in treating children with autism spectrum disorder and motor speech disorders with a focus on early intervention. She graduated with her masters in speech-language pathology from Towson University and has been a speech-language pathologist for 6 years. www.crescendospeechtherapy.com

May is Apraxia Awareness month! Childhood apraxia of speech (CAS) is a congenital, neurological motor speech disorder that impairs a child’s ability to motor plan the oral movements needed to produce words. Children with CAS typically have a good understanding of language but are not able to express themselves and approximately 1 in 1000 children will be diagnosed with CAS.

The act of speaking is actually quite complicated! It starts with an idea that is formulated into words and/or phrases. Your brain then has to decide what sounds and in what order are needed to say each word. Your brain sends that information to your muscles in your mouth that are needed to move. Then you move your muscles! Children with CAS have difficulty sequencing the sounds in the correct order and then sending that message to their muscles.

Common symptoms of CAS include highly inconsistent speech with frequent vowel errors and will often say the same word many different ways. They may have prolonged pauses between sounds or syllables as well as inappropriate stress on syllables or words. You may also notice “groping” behaviors in which you may notice your child struggle to achieve the correct mouth posture to produce the word. CAS may be diagnosed by a speech-language pathologist that has experience with motor speech disorders. You can find an experienced SLP on the Apraxia-Kids.org website!

CAS requires a special type of speech therapy that is specific to motor speech disorders and often involves multi-sensory cues including touch cues, visual cues, and auditory cues. Additionally, it is recommended that they participate in intensive speech therapy for at least 2-4 days a week.

Interventions specific to CAS include Dynamic, Temporal, and Tactile Cueing (DTTC), Rapid Syllable Transition Training (ReST) and Prompts for Restructuring Oral Muscular Phonetic Targets (PROMPT) therapy.

With the right speech therapy and the support of the entire community, children with apraxia can and do make amazing progress in the ability to speak!

-Alyssa S. Gilligan, M.S., CCC-SLP

Parents: You Know Best

Missing early language milestones is one of the first observable signs leading to parent concern about their child’s development. Parents are often comforted by well-intentioned friends, family and (unfortunately,) healthcare professionals to “wait and see if they grow out of it.” There will always be a story, intended to ease parental nerves, of a neighbor’s cousin’s friend’s son who didn’t speak a word “until they were 4” and now is totally fine! He never needed speech therapy or anything special, so I’m sure your child won’t either.

As a parent, trust your gut. Know the signs, and push for a referral from your pediatrician, even if your concerns are being dismissed. One study from the University of Oregon found that a simple 15-minute parent questionnaire submitted before or after a doctor's appointment resulted in a 224-percent increase in referrals of one-year-old and two-year-old children with mild developmental delays in a yearlong study. This means that without parent input, 53 of 78 referrals would not have been made by the pediatrician’s observations alone. The study also indicated that physicians had a greater difficulty identifying delays at 12 months compared to 24 months. Neural circuits in the brain, which create the foundation for learning, behavior and health, are most flexible (or able to be molded,) during the first 3 years of life. Missed signs between 12 and 24 months equates to 1 whole year (excluding any potential wait lists,) without early intervention services, which over 40 years of research has shown to be crucial to short and long term gains.

The bottom line is, always air on the side of caution and ask for a referral, regardless of the opinion of others… even your pediatrician. You are the expert on your child!

Here are a few myths associated with Early Intervention (EI):

  • Therapy is too expensive: From birth to three years old, your child qualifies for free early intervention evaluations and services, in every state in the U.S. Here is a list of early intervention providers by state. You don’t need to wait for a referral from your doctor for an evaluation with EI- go ahead and call today! EI can be provided in-home or in an outpatient center, depending on your location. You may choose to add additional private therapy depending on your child’s needs.

  • My child is over 3 years old, it’s too late: For children who have not received EI by 3 years old, contact the Child Find program through your local public school system (google “Child Find“ and your state). Children ages 3-21 with suspected delays are entitled to free evaluations and services through the school system. You may choose to add additional private therapy depending on your child’s needs. You can find local speech therapists in your area using the American Speech-Language Hearing Association (ASHA)’s ProFind Tool: www.asha.org/profind/

  • My child attends private school; they don’t have therapists there: Even if your child attends a private school, they are still entitled to a free evaluation and services through Child Find. A speech-language pathologist from the public school system where your child’s private school is located can push-in to your child’s school to deliver services. You may choose to add additional private therapy depending on your child’s needs (See above for links for a previous post on school/private services and to find local therapists)

  • I have concerns for Autism; EI or Child Find is enough: Though EI and Child Find can assess for Autism through a multidisciplinary evaluation with a psychologist, an educational classification of Autism is not the same as a medical diagnosis. If your child is identified as having Autism through EI or Child Find, it will entitle them to services within school; it will not cover private services through your insurance company. The National Research Council has determined that a minimum of 25 hours per week of early, intensive intervention is best practice for children with Autism; this means that a combination of school and private services is usually the best bet for long term gains. If you have concerns regarding Autism, contact an Autism Center in your area for a multidisciplinary evaluation; because Autism is a large “spectrum,” disorder (meaning it presents in different ways, with varying degrees of severity,) it’s important to see specialists when determining an Autism diagnosis. If you’re unsure if you have concerns about Autism, check out the following resources:

  • Parent Questionnaire that assesses for level of concern for autism (M-CHAT)

  • Videos comparing typical play development in toddlers vs. toddlers with Autism

  • Additional developmental milestone information

The moral of the story is: you, as a parent, are your child’s best advocate. Pushing for referrals early on may feel overly cautious; however, research shows that the earlier the intervention, the greater the outcomes. In terms of your child’s development, it is always better to be safe than sorry. Trust your gut, know the signs, act early, and keep rocking parenthood!

Jackie

Echolalia and Jargon: Defined

First of all, what are echolalia and jargon?!

These terms are often thrown around when talking about early development, but not always clearly explained.

Echolalia ("echo-lehl-ee-yuh"): repeating others' words and phrases with the same intonation and inflection. Echolalia can be immediate, (imitating what you say or ask,) or delayed (this is also sometimes called "scripting," and refers to repeating lines from T.V. shows, videos, or previously heard language repetitively). Here's an example of echolalia.

When echoing, children may be able to produce language that is more complex than what they are able to use functionally. Parents often (understandably,) express confusion about this when asked how their child communicates; "My child can speak in sentences...but it's only ever things he's heard before, and not all the time." For example, children may produce 3-5 word sentences that they've heard before, or sing songs in their entirety, but are unable or have significant difficulty using their own words spontaneously to express their wants and needs in an age appropriate way ("juice" or "I want some juice," to request). This tells us that though these children are able to repeat language they hear, (with an impressive amount of memory and mimicry!) they are not fully understanding the words as individual units that can be combined to communicate with others.

Jargon: strings of vowels and consonants with conversational intonation, without or with minimal production of meaningful words. Sometimes this sounds like, "bhjfblsdkhf mama fhdiskdf!!" :) The recent viral video of that adorable baby having a "conversation," with his father is a great example of jargon (if you haven't already watched it, you're welcome!)

What's "typical"?

Echolalia: Some echolalia is typical starting around 1 year, 6 months of age. Your child is actively absorbing language from their environment; you might hear them repeat your language as they are learning new words or concepts. For example, they may seem really interested in a new snack choice. You say, “These are grapes!” Child says, “Grapes!!” excitedly. Your child is repeating your words because they’re attributing it to this new object of interest. At this stage, your child should still be producing their own, non-echoed language in the majority of cases.

The occasional use of echolalia is usually eliminated by age 3. When a child produces primarily jargon and the majority or entirety of their intelligible language is echoed from others, it can be considered a red flag for developmental disorders, including Autism Spectrum Disorder, (otherwise known as "Autism," or "ASD"). Though echolalia is not the sole diagnostic indicator of ASD, research has found that up to 85% of verbal children with Autism exhibit echolalia in some form. There will be future posts on early warning signs of ASD, but in the mean time, here are videos and explanations of other "Red Flag," behaviors indicating concerns for Autism.

Jargon: Between 1 and 1 year, 6 months old, children produce jargon frequently! They are observing our inflection patterns, and attempting to participate in the conversation. The use of jargon should be eliminated by age 2. By 2 years old, your child should produce more novel (non-echoed,) words than jargon, and speak with about 50% intelligibility.

How do we help?

Echolalia: When a child is repeating your language frequently, avoid asking questions. Your child repeating what you’re asking is a sign that they a) don’t understand what you’re asking and/or b) don’t have the language to give you a response just yet! Repeating the questions repetitively often results in frustration… for the child and the parents! Here are some specific recommendations based on situation and type of echolalia you may be seeing:

*Avoid telling your chid, "Say ____." Your child will, inevitably do exactly what you ask.. and say, "Say, hi!" or "Say, bye bye!" It's best to model language exactly as your child would say it ("Hi, Mom!" "Want more snack.")

*Instead of asking questions, try leading with the answers. Consider: “Truck!” instead of “What is it?” when reading a book, “I’m eating!” instead of “What are you doing?” “I’m sad.” Instead of “Why are you crying?”

*If your child is repeating your language when they are sad or hurt, ("You're okay," while crying, "It's okay, come to Mommy!" when scared,) model language for them that fits the situation ("I fell down," "I hurt my hand," "I'm okay," "I'm scared")

*If your child is scripting language, and using it functionally ("Oh no! What will we do?" when something breaks,) offer a more flexible model ("The car broke. I need help.")

If your child tends to use the same phrase every time when requesting (“I want ____,” or “____, please,”) model different ways they can ask! Try things like “More ___, please!” or “Can I have ___?”

Jargon: The most important thing is to respond to your child's productions! Just as our rock star Dad did in the viral conversation video, responding to your child when they produce jargon is a crucial step in their development; you are teaching them reciprocity and encouraging engagement. If your child is producing jargon and is giving you a clear indication of what they are interested in or are trying to say, say it for them! For example, your child reaching towards bubbles and producing jargon while looking at you. Model, “Bubbles!” or “Want bubbles!” for them before engaging in the bubble activity. Repeat this model and then start to pause to allow your child the opportunity to fill in!

Happy Chatting!

Jackie